Stennis Foundation : Foundation for Leukodystrophies : Non-Profit Organization

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The Stennis Foundation is a non-profit organization committed to raising public awareness regarding the Leukodystrophies, as well as raising funds for Leukodystrophies research, and forcefully advancing toward a cure for these diseases. The Stennis Foundation also advocates for blood and marrow donation, and works with other organizations to recruit groups and individuals to the "Be The Match" national bone marrow registry.

The Stennis Foundation is recognized by the IRS as a tax-exempt charitable organization under section 501(c)3. We need your gifts, large or small, to help us forcefully advance toward a cure for the Leukodystrophies. Donate online by clicking here. Thank you for your support!

The "One Step Closer" Walk for Leukodystrophy in Allen, TX on 7/24 was a fabulous event! We raised awareness of Leukodystrophies, we raised funds for Leukodystrophies research, and the "Be The Match" national bone marrow registry has 18 new committed donors!

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NEW CAMPAIGN FOR LEUKODYSTROPHIES AWARENESS MONTH & WORLD LEUKODYSTROPHIES DAY Stay tuned for details!
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BLUE RIBBON RECIPES!
"Blue Ribbon Recipes" is a collection of recipes from Leukodystrophy families and friends everywhere! These books make fabulous gifts, and we are very excited about this project! Order your cookbooks by clicking here.

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FLOWERS!
Do you want to send flowers for special occasions? The Stennis Foundation has partnered with flowerpetal.com, and we receive 12% of all sales. Just go to our special "flower website" at http://stennisfoundation.flowerpetal.com, and place your order!

"One Step Closer" Walk for Leukodystrophy
We have walks tentatively scheduled for the following towns, but we need volunteers to help carry out the duties to actually make the events happen. Please contact us if you can help in securing locations, obtaining sponsors, helping to promote the events, recruiting participants, and helping on the day of the event.

Grand Rapids, MI - TBA

Minneapolis, MN - TBA

Tampa, FL - TBA

South Carolina - TBA

Registration is open for all Walks! Click here to register online. You can pay your registration fee through PayPal.

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If you have ever wondered about the work of The Stennis Foundation, this video is a must see:
http://www.youtube.com/watch?v=YDl101JK9TA

The Stennis Foundation is committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research. The fundraisers are "for the families" -- to bring Leukodystrophies families together with other Leukodystrophies families. The funds raised are used to fund desperately needed research, and cover administrative expenses. There are some interesting things happening in the world of research, in Mexico. Although these latest developments are not "FDA approved" they have given hope to MLD families.

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DR. MARIA ESCOLAR'S RESEARCH
Please click the following links for information related to Dr. Escolar's research at University of North Carolina.

www.nfrd.unc.edu

http://nfrd.unc.edu/research/mld.cfm

http://nfrd.unc.edu/research/krabbe_natural_history.cfm

http://nfrd.unc.edu/research/krabbe.cfm

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Contributions to The Stennis Foundation are tax-deductible under IRS section 501(c)(3).

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Find out the ways you can help support The Stennis Foundation as they raise funds to advance research and find a cure for the Leukodystrophies.

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