The Stennis Foundation is a non-profit organization committed to raising public awareness regarding the Leukodystrophies, as well as raising funds for Leukodystrophies research, and forcefully advancing toward a cure for these diseases. The Stennis Foundation also advocates for blood and marrow donation, and works with other organizations to recruit groups and individuals to the "Be The Match" national bone marrow registry.
Did you know....The Stennis Foundation is the originator and exclusive sponsor of Leukodystrophies Awareness Month, It's the LAW, Leukodystrophy Awareness Walk, and World Leukodystrophies Day (Last Saturday in September)? The Stennis Foundation also originated and trademarked the Navy Blue Ribbon as the Leukodystropies Awareness Ribbon. The Stennis Foundation is always at work, raising awareness of Leukodystrophies and funds for research.
ONE STEP CLOSER Golf Classic - Register now!
To help us further our mission of raising awareness of these diseases and raising funds for research, we are hosting the One Step Closer Golf Classic on Saturday, September 27, 2014. This is also World Leukodystrophies Day (Last Saturday in September). We want you to be a part of the excitement! Join us in Fort Worth, Texas, as we come together to "Take the Bull (of Leukodystrophy) by the Horns."
The Shotgun Start for this 4-man scramble begins at 1:00 (Registration/sign-in begins at 11:00). A fajita bar and awards will follow.
Whether you are a skilled player or a novice, the One Step Closer Golf Classic will be a fun time! And just think of all in the Dallas/Ft Worth area who will know about Leukodystrophies before the weekend is over! Sign up today to be a part of this exciting event!
Levels of Support include:
Presenting Sponsor $10,000
Co-presenting Sponsor $5000
Cart Sponsor $1000
Green Fees Sponsor $1000
Tee Box Sponsors $600, includes 1 player spot
Player $175 single or $600 team
Register or donate here.
LEUKODYSTROPHIES AWARENESS RIBBON MAGNETS
These fabulous magnets for Leukodystrophies Awareness are here, and you can get them for $1.25 each, plus postage. Please use the "Contact" link to let us know how many you would like.¬†We will figure postage and let you know; then you can use the "Donate" link to submit payment.
Thanks for your support! Because of your generosity, we are "One Step Closer to a Cure!"
BLUE RIBBON RECIPES!
"Blue Ribbon Recipes" is a collection of recipes from Leukodystrophy families and friends everywhere! These books make fabulous†gifts, and†we are very excited about this project! Order your cookbooks by clicking here.
Do you want to send flowers for special occasions? The Stennis Foundation has partnered with flowerpetal.com, and we receive 12% of all sales. Just go to our special "flower website" at http://stennisfoundation.flowerpetal.com, and place your order!
"One Step Closer" Walk for Leukodystrophy
We have walks tentatively scheduled for the following towns, but we need volunteers to help carry out the duties to actually make the events happen. Please contact us if you can help in securing locations, obtaining sponsors, helping to promote the events, recruiting participants, and helping on the day of the event.
Grand Rapids, MI - TBA
Minneapolis, MN - TBA
Tampa, FL - TBA
South Carolina - TBA
Registration is open for all Walks! Click here to register online. You can pay your registration fee through PayPal.
If you have ever wondered about the work of The Stennis Foundation, this video is a must see:
The Stennis Foundation is committed to raising awareness of the Leukodystrophies, and to raising funds for Leukodystrophies research. The fundraisers are "for the families" -- to bring Leukodystrophies families together with other Leukodystrophies families. The funds raised are used to fund desperately needed research, and cover administrative expenses.
Contributions to The Stennis Foundation are tax-deductible under IRS section 501(c)(3).